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Community-Based Dialogue: Engaging Communities of Color in the United States' Genetics Policy Conversation

National Human Genome Research Institute

Toby Citrin and Stephen M. Modell

University of Michigan

Tené Hamilton Franklin

Meharry Medical College

Esther W. B. Bleicher

National Human Genome Research Institute

Leonard M. Fleck

Michigan State University

Engaging communities of color in the genetics public policy conversation is important for the translation of genetics research into strategies aimed at improving the health of all. Implementing model public participation and consultation processes can be informed by the Communities of Color Genetics Policy Project, which engaged individuals from African American and Latino communities of diverse socioeconomic levels in the process of "rational democratic deliberation" on ethical and policy issues stretching from genome research to privacy and discrimination concerns to public education. The results of the study included the development of a participatory framework based on a combination of the theory of democratic deliberation and the community-based public health model which we describe as "community-based dialogue."

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